Charity Calendar – December 7, 2020

  • 07 December 2020
  • Barbora Košecová
Charity Calendar – December 7, 2020

Start of the new week brings along the revelation of another non-profit organization CCC supports in this year’s Charity Calendar.

The voting in CCC Istanbul was quite thrilling as three organizations gained very similar number of votes but finally the winner was “SMA Hastalığı İle Mücadele Derneği” (SMA Disease Fighting Association).

Primary goal of this organization is to provide accessible services to individuals with spinal muscular atrophy (SMA) and their families in every field.

SMA is a rare neuromuscular disorder that results in the loss of motor neurons and progressive muscle wasting. It is usually diagnosed in infancy or early childhood and, if left untreated, the most common genetic cause of infant death. The common feature is progressive weakness of muscles with arm, leg and respiratory muscles affected first. Patients with this disease are often unable to walk, have decreased arm-leg movement possibilities, suffer with respiratory difficulties, malnutrition… and that’s just a tiny part of the difficulties they have to cope with.

And as it is unfortunately often the case, the costs required for the treatment of this disease can reach millions of Euros.

That’s why “SMA Hastalığı İle Mücadele Derneği” carries out all kinds of activities to help the affected families: providing SMA patients and their families with accessible opportunities in all areas, helping them getting hold of expensive medication, supporting the implementation of new treatment methods, raising awareness about SMA in the society and much more.

CCC supports this mission with 19,000 Turkish Lira and if you would like to help too, your donation is more than welcome! By clicking the DONATE button, you can provide medical supplies, medical devices and cash aid for SMA patients: